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Open Forum General discussion |
2 | 2 | Payment type surcharge By LittleButterfly  11May2010 at 10:11am |
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Diagnosis Have you been diagnosed with Post Polio Syndrome? Discuss with fellow suffers. Who made diagnosis? Has this been important? |
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Symptoms Discussion on what your symptoms are and is it Post Polio Syndrome or something else? |
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Orthotics Do you still have same callipers/splints for many years? When did you last have a review for new callipers/splints or specially made shoes? |
1 | 14 | Footwear By rosenam 17Dec2009 at 7:05pm |
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Mobility Has your mobility decreased? Can you compare things you cannot do now that you found easier before symptoms of Post Polio Syndrome of Late Effects of Polio |
1 | 2 | Retirement through ill health... By rosenam 22Aug2010 at 6:40pm |
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Fatigue Discussion on how fatigue affects daily life/activities. Do you have any tips for coping with fatigue that you care to share? |
1 | 6 | What to take . By mo 26Mar2010 at 10:03pm |
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Equipment Compare any equipment you find useful e.g. I eventually decided to use a wheelchair or scooter to conserve my energy for important things in life. |
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| Treatment | ||||
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Medication Discussion on any medication you have used for symptoms of PPS that have been helpful or if you had any bad effects from any medication. |
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Homeopathic Discussion on homeopathic treatments which has been helpful with PPS symptoms |
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Exercise Compare notes on how exercise has been helped or made PPS symptoms worse e.g. for or against exercise when diagnosed with PPS? |
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Hydrotherapy Discussion on hydrotherapy treatment e.g. exercise is a lot easier undertaken in hot warm water. |
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Surgery Have you had any surgery since experiencing symptoms of PPS? Was it successful or made symptoms worse? |
1 | 8 | Surgery By bob73 29Apr2010 at 7:39pm |
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| Support | ||||
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Consultants/GP Discussion on support you have experienced from consultant or GPs and their knowledge of Post Polio Syndrome/Late effects of Polio. |
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Self Help Group/Network Compare with others any support or useful information you have had from Self Help Group/network. |
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Family & Friends It can be difficult to tell family and friends about new problems or emotions you are experiencing. Discuss this with others who are experiencing same problems through PPS. |
1 | 6 | No postings By SPPN Chairperson 12Sep2009 at 8:40pm |
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Fellow Sufferers Discuss with others who understand what it’s like to experience new and alarming symptoms and emotions due to PPS or late effects of polio many years after polio. |
2 | 108 | Have a moan By rosenam 16May2010 at 11:04am |
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Coping Techniques Compare coping techniques you have found useful, sharing knowledge with like-minded polio survivors. |
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Our users have posted 146 Posts in 9 Topics in 17 Forum(s) Last Post; 22Aug2010 at 6:40pm By rosenam We have 40 Forum Members The Newest Forum Member is Linclug |
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